Cystic Fibrosis Newborn Screening Collaboratives

CPHI is leading multi-state collaboratives that bring together Cystic Fibrosis (CF) Centers and newborn screening programs to improve communication, identify system bottlenecks, and strengthen the overall screening process.

Goals of the Collaboratives

• Develop and share process improvement strategies that support the timely screening and diagnosis of babies with CF.

• Provide a format for participants to discuss key challenges and work together to find practical solutions.

• Establish regular meetings focused on continuous Quality Improvement (QI).

Organized into four topic areas, the collaboratives meet regularly to share solutions and strategies.

• IRT Cutoffs and Decision-Making 

  First Thursday of even months at 3 PM ET

• Education for Parents and Providers 

  First Monday of even months at 1 PM ET

• CFTR Sequencing Considerations and Reporting 

  Third Friday of odd months at 3:00 PM ET

• Communicating NBS Results to PCPs and CF Centers 

  First Thursday of odd months at 1 PM ET

We encourage state teams to meet in the off-months as well.

Ready to join a collaborative group or want more information? Contact Info@CPHInnovation.org.

Funding for these Collaboratives is provided by the Cystic Fibrosis Foundation (SONTAG24QI1).