Cystic Fibrosis Newborn Screening State Reports
State-level insights to inform and improve CF newborn screening systems.
Each year, CPHI produces detailed cystic fibrosis newborn screening reports specific to each U.S. state. By bringing together data from the NewSTEPs repository and Cystic Fibrosis Foundation Patient Registry, this report provides a comprehensive view of state-level trends in screening practices and outcomes. These reports are designed to support your efforts in monitoring performance, identifying gaps, and prioritizing improvements.
The latest Cystic Fibrosis Newborn Screening State Reports are now available!
NBS Programs: If you are from an NBS program and have not received a copy of your CF-NBS State Report, please reach out to us directly.
CF Centers: If you are from a CF center and would like to view the full report, please contact your state’s NBS program. CF centers may access their CFF-specific report [via this link], while full reports (including NBS data) are distributed to state newborn screening programs.
View a sample of this year's report:
