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Cystic Fibrosis Newborn Screening State Reports

State-level insights to inform and improve CF newborn screening systems.

Each year, CPHI produces detailed cystic fibrosis newborn screening reports for every U.S. state to help programs monitor performance, identify gaps, and prioritize improvements.

 

Data for the reports comes from:

  • the NewSTEPs repository and

  • Cystic Fibrosis Foundation Patient Registry.

 

The reports provide a comprehensive view of state-level trends in screening practices and outcomes.


Don't have a current report?

  • NBS Programs: Please reach out to us at Info@CPHInnovation.org

  • CF Centers: If you are from a CF center and would like to view the full report, please contact your state’s NBS program. CF centers may access their CFF-specific report via the my.CFF library, while full reports (including NBS data) are distributed to state newborn screening programs.




View a sample of the latest report below









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