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Cystic Fibrosis Newborn Screening Webinar Series

Expert-led webinars on key topics in CF newborn screening.

The Cystic Fibrosis Newborn Screening Webinar Series, hosted by CPHI, features expert-led presentations on key topics in CF newborn screening. Upcoming topics include IRT thresholds, sequencing, and provider communication. This series is part of the Cystic Fibrosis Newborn Screening Collaboratives that aim to support state newborn screening programs in the U.S.  For more information on the webinar series or to join a CF NBS Collaborative, please reach out to Info@CPHInnovation.org. These webinars are funded by the Cystic Fibrosis Foundation (SONTAG24QI0 and MCCOLL19QI0).



UPCOMING WEBINARS




Check back soon for more upcoming webinars and registration details or explore past webinars below.




                        And later this year:

  • Year in Review and Highlights of Successes





Past Webinars:

Challenging Cystic Fibrosis Newborn Screening Cases in the NICU: How CLSI Guidelines Can Help

 Presented by Amy Dettori, MD, Seattle Children's Hospital; Meghan McGarry, MD, Seattle Children's Hospital; Amy Gaviglio, MS, CGC 4ES Corporation

Friday, September 26th, 2025

🎥 Click here to view this webinar (Passcode: 0fR7hi?q)



Pediatrician Feedback on Cystic Fibrosis Newborn Screening Results Reports

 Presented by Michele Gornick, PhD

Thursday, April 10th, 2025

🎥 Click here to view this webinar (Passcode: yU?7SPr4)


Shared Materials

Virginia Follow-Up CF Reporting Templates

(Contact Info@CPHInnovation.org for the .dotm template files)

DNA Panels and Sequencing (Technical Assistance, Panel Opportunities, Resource Labs)

 Presented by Mei Baker, MD, FACMG and Denise Kay, PhD

Thursday, May 1st, 2025

🎥 Click here to view this webinar (Passcode: .xB1dH9N)


Educating Pediatricians and Primary Care Providers on CF NBS

Presented by Susanna McColley MD, FAAP, ATSF, Beth Tarini MD, MS (Health Services), MBA, and Michelle Gornick, PhD

Wednesday, Jun 11, 2025

🎥 Click here to view this webinar (Passcode: f#Sdi7iN)


Family Impact of CF Newborn Screening and Opportunities for Partnerships

Presented by Cambrey White, Faith Clark, Álvaro La Parra Pérez, Marissa Taylor, MPH, and Karey Padding, LMSW

Thursday Jun 26, 2025

🎥 Click here to view this webinar (Passcode: KCj?9c&K)


IRT (Setting and Evaluating Cutoffs): Two States' Experiences

Presented by Stan Sciortino, PhD, Kendra Croak, and Stacey Martiniano, MD

Thursday Jul 10, 2025

🎥 Click here to view this webinar (Passcode: 45qTS#M*)


Genetic Variants and Reporting after Sequencing

Meghan McGarry, MD, Karen Raraigh, MGC, CG, and Deanna Greene, MD

Thursday Jul 17, 2025

🎥 Click here to view this webinar (Passcode: 33?scM2$)

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